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Beckwith-Wiedemann Support Network
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Web site for BWS links.
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Official website for the BWSN
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The BWSN is a non-profit organization created for parents, professionals, and others interested in the Beckwith-Wiedemann Syndrome.
The major goals of the BWSN are (1) to provide information and peer support to the individuals and families affected by BWS, (2) to increase both public and professional awareness of BWS, and (3) to encourage research aimed at the cause, early detection (including prenatal), and treatment of BWS.
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The
Parents Forum is a website where parents can go to contact other parents on the many topics that come up in the life of a child with Beckwith-Wiedemann Syndrome.
It is also where the BWSN maintains contact with the families.
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The
Beckwith-Wiedemann Children's Foundationis a non-profit organization dedicated to increasing the quality of life for those affected by Beckwith-Wiedemann Syndrome. Please follow the link to their web site to learn more about the wonderful things this group does.
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